LivlifetotheMax NEC Awareness Ride and Raffle

Alison and Tim Stevens / 2023 NEC Awareness Month - Pain Into Power

In memory of our daughter Liv, whom we lost to NEC in 2020, we want to help work towards a world without NEC and make sure other parents don’t have to go through the pain that we did.

  • $10,209

    Raised

  • $5,000

    Goal

  • 37

    Supporters

  • 0

    Days Remaining

Recent Transactions

  • LinkedIn Corp

    $2,136.00 / 786 days ago

  • Laura Nisivoccia

    $100.00 / 826 days ago

  • Ashley Novick

    $50.00 / 826 days ago

    Novick Family

  • Alison Stevens

    $225.00 / 828 days ago

    Final raffle count

  • Carol Kaplan

    $109.00 / 828 days ago

    Such a sad sad course of events with these precious babies. Hoping that no parent ever has to endure the illness and loss associated with this disease. Let’s LivlifetotheMax and end this !! Love you guys❤️

  • Lise and Allen Mayer

    $50.00 / 829 days ago

  • Erica Smith

    $100.00 / 830 days ago

    Ali and Tim, you are so inspirational. Sending you Love from Drew, Erica, Arlo and Josey.

  • Shayne Spencer

    $100.00 / 830 days ago

  • Amelia Homnick

    $100.00 / 830 days ago

    Max and Liv you will never be forgotten. Teddy, Ava & Monty are blessed to have their big brother and sister watching over them. Love you all.

  • Alison Stevens

    $400.00 / 830 days ago

    More raffle participants

  • Stephanie Mann

    $325.00 / 830 days ago

    Liv and Max, Aunt Stephie will always remember and love you forever and ever ❤️

  • SyuinChet Tee

    $25.00 / 831 days ago

  • Bart Mol

    $25.00 / 831 days ago

  • Catherine Hartman

    $50.00 / 831 days ago

    Such a meaningful way to honor precious Liv and Max. Sending love.

  • Brendon Ratner

    $100.00 / 831 days ago

  • Aaryn Richardson

    $200.00 / 832 days ago

  • Jack Trudeau

    $50.00 / 834 days ago

  • Julie Kaplan

    $50.00 / 835 days ago

    Sending lots of love <3 such an important cause! Love you guys

  • Shannon Richardson

    $50.00 / 838 days ago

  • Aneessa Steilen

    $25.00 / 839 days ago

  • Verena Michelitsch

    $100.00 / 840 days ago

    Thank you for sharing your story and bringing awareness to NEC. Sending lots of love to your family. Verena, Tobias & Milo

  • Monika Henn

    $150.00 / 841 days ago

    <3

  • Alison Stevens

    $2,136.00 / 841 days ago

    Compliments of the raffle participants!

  • Charles Christensen

    $50.00 / 841 days ago

  • Ben Bernstein

    $50.00 / 841 days ago

About LivlifetotheMax NEC Awareness Ride and Raffle

May is NEC awareness month and we will be continuing with a Peloton group session, but also adding another element to our annual event this year. Due to a high volume of our donor's from last year not participating in the cycle ride, we are adding a raffle with great prizes, 100% of proceeds will go to the NEC Soceity. That said, bragging rights will still be very much at stake for the Peloton ride! The ride will take place on June 11th at 12:00 pm, two days before we lost Liv almost three years ago. Please add the #LivlifetotheMax tag to your Peloton profile and join Ally Love's 30 min feel good ride.

For details on the raffle, please go to the link here (note: you'll have to do a little math on your end for total ticket price, I lost the fight with this form). If you are more into tax deductible donations or simply can't find a prize that sparks your interest, please click the "Donate Now" button on this page, any amount is appreciated!

A little more about our experience with NEC and the journey of losing our sweet Liv to this devastating disease:

April, May, and June 2020 - a time when most people were worried about how long covid would last and if they could safely go outside to get a little fresh air and exercise. Unfortunately, my wife and I had no choice but to expose ourselves as we fought for our daughter Liv's life in the NICU, after already losing her twin brother Max the day after delivery due to a different condition. 

We were in and out of a hospital for a grueling 49 days, one at at time because pandemic restrictions prevented us from seeing our daughter at the same time. On May 29th, 2020, our little girl was diagnosed with Necrotizing Enterocolitis (NEC). After two surgeries, many discussions with doctors, and a valiant fight, we said goodbye to our sweet Liv on June 13th, 2020. 

Like many parents that have encountered this brutal disease with their children, we had heard little about NEC, but could only hope that we would not be stricken by the rare side of the statistics. We want to help the NEC Society to make sure that other parents don't fall on the unlikely side of the statistics and ultimately eradicate NEC altogether.

Thank you for your support! I've included information about NEC Society below.
The NEC Society is committed to building a world without NEC. Necrotizing enterocolitis (NEC) is a devastating intestinal disease that affects babies in their first weeks and months of life.
We are a 501c3 nonprofit organization that brings together patient-families and clinician-scientists who are dedicated to improving outcomes for our most vulnerable babies. Join us and learn more NECsociety.org

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